One Brave Mother and 65 Roses

One Brave Mother and 65 Roses

We spoke to the wonderful Jennifer Jury who runs the annual Charity Ladies Lunch Event on the 31st of May (2019) for Cystic Fibrosis at the RACV City Club in Bourke St Melbourne.

Tell us about the luncheon and your part in it

​Charity & Fun (aka Jan Dalton, Bee Pitts, Jennifer Jury) run an annual Charity Ladies Lunch Event for Cystic Fibrosis always in the Month of May, where hundreds of women will come together to celebrate ’65 Roses’ Month and raise funds to help find a cure for Cystic Fibrosis (CF).  My 10-year-old daughter Ellie-May has CF & we are proud to say that with the incredible generosity of everyone involved to date we have raised over $175,000 for this worthy cause so far! Proceeds support 2 CF organisations – Cystic Fibrosis Community Care & Cure4CF.

One Brave Mother And 65 Roses, Geelong Social Media, Geelong Digital Media, Cystic Fibrosis

“The phrase ’65 Roses’ comes from the mouth of a child who mistook the pronunciation of Cystic Fibrosis thinking it instead ’65 Roses’ and as such it has become a meaningful symbol for the charity.”

“When a newborn baby is diagnosed with CF the grief experienced by the parents is unimaginable. CF is the most common, genetically inherited, a life-shortening condition affecting young Australians today – a baby is born with CF every four days.  The condition affects the lungs, digestive system and sweat glands requiring relentless expensive, daily physiotherapy and medical regimes. The average life expectancy for those born with CF is 38 – there is no cure.”

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The idea of a ladies luncheon came to us about 8 years ago when we were attending a Ladies Lunch Event for Ovarian Cancer. We loved being part of that experience & decided that we could replicate the event for Cystic Fibrosis. There is just 3 of us volunteers, working tirelessly behind the scenes to ensure the day is a huge success & that all runs smoothly & we maximise our potential to raise much-needed funds & awareness for CF. Now in our 6th year, we have a good, efficient blueprint to follow, but chasing ticket sales & donations for prizes is always the most time-consuming part.

The CF Luncheon is all about raising funds & awareness for CF while having a good time.

One Brave Mother And 65 Roses, Geelong Social Media, Geelong Digital Media, Cystic Fibrosis

There is a 2-course meal, free-flowing beverages, goody bags for all guests, live music & lots of dancing, celebrity MC & lots of ways to donate to our cause through raffles, auctions & mystery balloons. It really is a chance to rally the girlfriends together & enjoy a “long lunch”, and all for a good cause!

What do you wish people knew about CF that perhaps they don’t?

​”That there is NEVER a day off from CF” – as my 10 yo often tells us & this year Ellie-May will be speaking as the Guest Speaker to let the audience really know what it is like to be a child living with CF. The constant stress & anxiety for all family members is massive, but you really do learn to appreciate the special things in life.

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Who have been some if your fave MCS?

​Where do I begin – we have been so fortunate & thankful to have had amazing & extremely talented MCs in Claire Hooper, Denise Scott, Cal Wilson & Lano. They have all been unique in their approach & had the audience in fits of laughter, which always helps create the perfect atmosphere. If I really had to choose, we took a risk last year having a male, but Lano absolutely nailed it. We were all in stitches.

One Brave Mother And 65 Roses, Geelong Social Media, Geelong Digital Media, Cystic Fibrosis

What does the rest of your life look like? What’s a regular week for Jen?

​BUSY is probably an understatement, but like most mums, we are good at juggling and multi-tasking!! I work part-time at Vic Beach Geelong (our own family business), run around after 2 busy daughters 10yo Ellie-May & 12yo Olivia and try to have some “me” time especially to exercise and love nothing better than hanging out with my hubby Greg & kids and enjoying life in Jan Juc.

Why do you feel it is important to be involved at this capacity for things you feel passionate about?

​I think when you have a personal connection & know how important research into finding a CURE is, you will work your butt off & you can’t help but be passionate. The reward when it all comes together far outweighs the workload. Ellie-May is now 10 years old & we know how precious time is. In recent years we have had a few scares when lung function has rapidly dropped to 50% so I will continue to do whatever I can to make a difference & am so fortunate to have great friends who jumped on board with me. And despite all the hard work, we do have some fun along the way 🙂

To book seats or a table of ten for the beautiful 65 Roses ladies lunch this May, email charityandfun@gmail.com

 

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The World’s Most Influential Young People Inspiring The Way For 2019

The World’s Most Influential Young People Inspiring The Way For 2019

The World's Most Influential Young People Inspiring the way for 2019 by Montanna Macdonald for Ponderings Magazine

The world is grueling, inspiring and unequivocally extraordinary in all its facets.

It is important not to lose sight of what the world of other people just like you, are doing to make a change. It’s important to see beyond the norms and expectations on what society places upon you and look for inspiration as a pattern of universal effect. Some of us, and silently a lot of us have big aspirations and goals, yet are stuck in this cycle of societal consumerism and sleeping through our alarm clocks. So maybe it’s time we set a new period, a better mindset with the help of other influential younglings who are making their path to follow.

So who are the most inspiring young people of our day and age? Who is making a change? Who is not doing what every other young person thinks they should be doing? Who is unique, and will make you want to get up out of bed this morning?

Krtin Nithiyanandam, Age 17

17-year-old Krtin Nithiyanandam went from a broken pelvis; to an idea, finding universities who would support him in his award-winning research for an antibody that would detect early signs of Alzheimer’s disease. This research led to Nithiyanandam receiving the Scientific American Innovator Award at the Google Science Fair in 2017. Nithiyanandam has also worked with researchers at Cambridge University to try and make rare and hard to treat breast cancer more treatable. A young man who will stop at nothing to find cures, and save lives.

 

Muzoon Almellehan, Age 19

Muzoon Almellehan is a Syrian refugee and Activist for female education.  In June 2017, she became the youngest Goodwill Ambassador to UNICEF, which made her the first person in the world with official refugee status to become an ambassador for the global organisation. Almellehan’s accomplishments and hard work are truly inspiring in shaping the future for females in education and human rights.  

Shibby de Guzman, Age 14

Shibby de Guzman is only 14 years old and is one of TIMES 30 most influential people of the world. Why is she influential? At 14 she’s protesting the streets with cardboard signs on her chest standing up against Rodrigo Duterte’s fascist regime under the Philippines government. It is a dangerous and courageous act for de Guzman to stand up against a government and uphold what you believe is right.

Macinley Butson, Age 17

Macinley Butson is an Australian girl who at the age of 17 was the youngest recipient to date of the INTEL International Science and Engineering Award and the 2018 NSW Young Australian of the Year for her invention called the Smart Amour. The Smart Amour acts as a protection layer for breast cancer patients while they are undergoing radiotherapy. An idea which sparked to Butson’s mind while sitting at the dinner table with her dad.

Molly Steer,  Age 10

Molly Steer is another Australian girl who at the age of nine with the help of her mum made her Straw No More campaign to remove plastic straws from schools around Australia. Steer has convinced over 90 and counting Australian and International schools to cull the plastic straw. What was only meant to be a small change in Steer’s Cairns home, became an international campaign, resulting in Steer delivering a TEDx speech in 2017. A small step for Molly, but a big step in environmental change.

It is often mentioned that the younger generation is aimless, entitled and echoes of “millennial-itis”  call across the conversations of many of our elders, however I think you will agree with us – this is just not always the case. The selection of young people we have shown you are but a sample of SO MANY! The future is bright, and it may be an aspect for us to ponder on how we spend our energy, our time and the path we choose to take.

As the iconically wise Dr. Suess once said,

You have brains in your head,

And feet in your shoes,

You can steer yourself,

Any direction you choose.

 

 

About the Author:

Montanna Macdonald is currently studying journalism and public relations at University, and we welcome her as a contributor to Ponderings.  The love of meaningful and impacting communication fuels this passionate public speaker and an avid debate is always on hand with a social conscience that runs deep. This go-getter will write a speech to move an audience and inspire them into change. She doesn’t mind being friends with Muggles and wears her Gryffindor scarf with pride. Montanna has a love for broadcast media but doesn’t subscribe to the status quo. Robert Frost is her go to along with Dr. Seuss.

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